A disease is considered rare when it affects fewer than 1 in 2000 people. Rare Disease Day is a globally-coordinated movement, working towards equity in social opportunity, healthcare, and access to diagnosis and therapies for people living with a rare disease. Raising awareness and generating change for the 300 million people worldwide living with a rare disease, their families and carers.

Those living with a rare disease face many challenges, including:

• Difficulties in access to treatment and care, often resulting in heavy social and financial burdens on patients.
• A lack of scientific knowledge and quality information on the disease, often resulting in delays in diagnosis.
• Instances of misdiagnosis.

Get involved with Rare Disease Day by:

• Spreading awareness of the event
• Making a donation
• Joining or hosting a local event

For more information, visit:
https://www.rarediseaseday.org/what-is-a-rare-disease/